Committee on Privacy and Confidentiality Committee on Privacy and Confidentiality Committee on Privacy and Confidentiality
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ASA Committee on Privacy and Confidentiality Home Page

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PCDS web site Home

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Table of Contents

I. Privacy, Confidentiality, and Data Dissemination Guidelines for Government Agencies and International Organizations

II. Statistical Methods for Privacy, Confidentiality, and Disclosure Limitation

III. Human Subjects Protection in Research and Institutional Review Boards (IRBs)

IV. Health Care, Bioethics, and Personal Health Information

V. Topics in Education

VI. Topics in Finance

VII. Ethics, Principles, and Standards

VIII. Legal and Regulatory Sites

IX. Training Opportunities

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Welcome to the American Statistical Association's Privacy, Confidentiality, and Data Security web site

Sponsored by the ASA Committee on Privacy and Confidentiality

Dear web site Visitor:

The objective of this web site is to provide the most useful information about methodological, legal, ethical, and technical issues that are important for protecting and using statistical data.

We created this site because improvements in record linkage technology, advances in disclosure limitation methodology, and ease of access to electronic databases make it essential to keep abreast of current regulations, recommendations, and best practices in the field. Unless these concerns are adequately addressed, the quality of data available for statistical research, and decision-making may be compromised.

You will find that the scope of the material presented or made available here will be broader than statistics alone. This is because statistical methods must be used within the context of the regulatory, legal, and ethical considerations in which we work as professionals.

We expect that privacy, confidentiality, and data security issues will become increasingly important for those professionals who depend upon the cooperation of individuals and businesses in research and statistical studies. We hope our efforts here will also lay the groundwork for future development of additional Internet-based education initiatives in this field.

About This Site

This site is designed to provide links to articles, reports, guidelines, laws, ethical codes, and other information sources related to privacy and confidentiality.

The references on this site were chosen to provide a broad range of applications. They are also intended to be up-to-date and may be modified from time to time to ensure continued relevance.

Material presented here has been reviewed for relevance and quality by members of the ASA Committee on Privacy and Confidentiality and by members of our External Advisory Committee. We endeavor to represent here the best, most current information available via the Internet. Our PCDS web site Disclaimer is available to view.

This site is structured to allow users to focus on specific areas of interest -- these are the nine major headings on the left of this screen.

We expect that typical users of this information will include survey takers, statistical data users, academic, and private sector researchers, policy makers, and members of Institutional Review Boards. If you are engaged in other professional areas and find information on this site useful for your work, please drop us a line to let us know what field you are in and what you found to be most helpful.

Thanks for your interest. For more information on other activities of ASA's Committee on Privacy and Confidentiality please visit our web site.

Sincerely,

Gerald W. Gates
2001-2003 Chair, ASA Committee on Privacy and Confidentiality

Kimberly A. McGuigan, PhD
2002-2003 ASA P&C web site Initiative and
2002-2004 Member, ASA Committee on Privacy and Confidentiality

Joyce Weil
P&C web site Initiative Editor

Funding for development of the site was provided through a strategic planning initiative of the American Statistical Association. Continued development supported by donations of the American Statistical Association's sections on Health Policy Statistics, Survey Research Methods, and Government Statistics, as well as Pfizer Inc.


Helpful Options:

  • To view a full listing of current Privacy and Confidentiality Committee members, click here.
  • To view a full listing of web site Advisory Committee members, click here.
  • Submit suggestions for other links:
    Suggestions for links to additional sites that may not be shown here are also encouraged. While we cannot guarantee that a recommended link will be added, we can ensure that we will carefully consider your suggestions. Submit recommendations for additional links that you think may be useful here.
  • Send us suggestions for or comments about this site.


Revised from 08/17/2004 listing

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