Committee on Privacy and Confidentiality Committee on Privacy and Confidentiality Committee on Privacy and Confidentiality

ASA Committee on Privacy and Confidentiality

Key Terms/Definitions in Privacy and Confidentiality

Training Modules on Privacy and Confidentiality

Methods for Reducing Disclosure Risks

Protecting Biological and Health Data: Special Issues and Applications

Protecting Business and Tax Data: Special Issues and Applications

Protecting Demographic/Other Data: Special Issues and Applications

Guidelines for Government Statistical Agencies

Laws and Regulations about Privacy and Confidentiality

Human Subjects Protection, Ethical Research, and IRBs

 


Methods for Reducing Disclosure Risks When Sharing Data
Defining the Problem: Disclosure Risk and Data Utility

Any data access policy implicitly involves a trade off between disclosure risks and data usefulness.  One end of the spectrum is providing unfettered access to the data as collected (highest risk and highest usefulness); the other end of the spectrum is not disseminating any data (lowest risk and lowest usefulness).  Most groups' data access policies fall somewhere in between these extremes.  To understand this trade off, we recommend the following sources.

1. ASA Briefings of Congressional Staffers and Others in Government
This PowerPoint presentation, given on the Hill by members of the ASA Committee on Privacy and Confidentiality, gives an overview of the role statisticians play in balancing data access and data confidentiality.

2.  G. T. Duncan, S. A. Keller-McNulty, and S. L. Stokes (2001) "Disclosure Risk vs. Data Utility: The R-U Confidentiality Map" 
Lays out the problem of data dissemination as a trade off between risk and utility.

3.  J. M. O' Rourke (2003) "Disclosure Limitation at ICPSR."

Describes the issues of privacy and confidentiality, and how ICPSR handles them at Michigan.

4.  National Research Council (2005), Expanding Access to Research Data: Reconciling Risks and Opportunities, and
5.  National Research Council (1993), Private Lives and Public Policies: Confidentiality, Accessibility of Government Statistics.
Excellent overviews of disclosure risk measurement, statistical and technical approaches to balancing the risk-utility trade off.   The 1993 report was one of the first summaries of the issues in protecting confidentiality of data.  We recommend starting with the 2005 report.


6.  Eurostat's Glossary on Statistical Disclosure Control (2005)
Definitions of terms used in privacy and confidentiality. Developed by the European statistical community.

7. Introduction to data dissemination from the International Household Survey Network
Easy to follow introduction to the risk/utility trade off and to data access solutions.

8. Chance magazine, winter 2004 (link not available).
This special issue contains articles providing overviews of a variety of topics in privacy and confidentiality, including the risk/usefulness trade off. Articles are written for the general public.

Copyright ©2003, 2009 American Statistical Association